The Lupus Book: a Guide for Patients and Their Families

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Aug 20, 2007 Kathy rated it it was amazing

corking for those who may have an autoimmune disorder. You'll gain a wealth of inside data that about Doctors and so not hash out with you lot. It volition validate what you have been going through and near importantly...why

I run a support group online at http://www.LupusMCTD.com for fellow patients.
I promise you check us out.
Alive chats, "library" charts, resources and muchmore.

"Nosotros Understand What You Are Going Through!"

great for those who may have an autoimmune disorder. You'll gain a wealth of inside information that most Doctors so not discuss with you. It volition validate what you have been going through and most importantly...why

I run a back up group online at http://world wide web.LupusMCTD.com for young man patients.
I hope you lot check usa out.
Live chats, "library" charts, resources and muchmore.

"We Understand What You Are Going Through!"

...more

Obviously this is a volume with a limited audience, only if y'all accept lupus, take a loved i with lupus, or for whatsoever reason have a item interest in the disease, this is an incredibly informative text. For many this is the aureate standard of lupus books (for the layperson, at least), and I can see why: Wallace goes into a lot of detail, and I learned tons of stuff that my net searches hadn't revealed. Of grade it's not a fun or calorie-free read, merely 5 stars for beingness an splendid reference. Manifestly this is a volume with a limited audience, simply if you have lupus, have a loved i with lupus, or for whatever reason accept a item interest in the disease, this is an incredibly informative text. For many this is the aureate standard of lupus books (for the layperson, at to the lowest degree), and I tin can run into why: Wallace goes into a lot of detail, and I learned tons of stuff that my internet searches hadn't revealed. Of course it's non a fun or light read, but 5 stars for being an fantabulous reference. ...more

December 02, 2008 Lala rated it information technology was amazing

Very easy read for understanding lupus. I refer dorsum to information technology regulalry. Even booked a medical appt. with the writer who practices in Los Angeles a few years dorsum. Still a patient of his on a consult-basis and I consult with him and his nurses from time to fourth dimension.

Well-written book about lupus. Written by a rheumatologist, this volume simplifies medical jargon and answers many questions about the disease. This is not a boring book either. The physician has a humor and injects the chapters with experiences from people with the disease.

This is my bible in terms of dealing with SLE Lupus--it has answered all my questions in a sinmple, not-alarmist way. Clear, concise user-friendly information. An added bonus is a thorough discussion of the medications typically used to care for Lupus and their side effects.

April 19, 2016 Sheba Family rated it really liked it

A must read for anyone with lupus and any friend or relative of a Lupie! It is an first-class book, easy to understand, well written and very informative. Absolutely essential to regaining command and understanding lupus.
The only reason I did not give it 5 stars is that it takes a conventional, biomedical approach. I believe this arroyo in combination with alternative treatments are well-nigh constructive in treating Lupus. I encourage yous to read this book first and as a priority, but and then explore tre A must read for anyone with lupus and whatever friend or relative of a Lupie! It is an excellent volume, piece of cake to sympathise, well written and very informative. Absolutely essential to regaining control and understanding lupus.
The simply reason I did not requite it 5 stars is that information technology takes a conventional, biomedical arroyo. I believe this approach in combination with alternative treatments are most effective in treating Lupus. I encourage you to read this book get-go and equally a priority, only then explore treatments non mentioned in the books (preferably that pertain to healing the gut in a permanent fashion). The latter is useful is you have moved passed the life threatening stage of the disease and looking to reach optimal health (I.e reduce or eliminate the more than balmy symptoms of pain, fatigue, mental fog, depression grade fevers...). The book is essential knowledge for any lupus diagnosis right from the start and is especially relevant to a more agile state of the illness. ...more

Aug xiv, 2010 christina rated it it was amazing

This is non a fun read; information technology really falls in the horror genre in places. Nevertheless, it is well-written, and anecdotes are interspersed with the technical medical discussion. This is past far the pinnacle lay resource on lupus. Information technology has been near 10 years since my diagnosis, just I still learned a lot from the book.

I'd only like to chinkle in to agree that this must be the definitive reference for lupus patients. Wallace explains the motorcar-allowed response in understandable terms, and discusses how each concrete organisation is involved in lupus, making this an attainable & indispensable guide particularly for the newly diagnosed or those wanting a deeper understanding of this disease. I'd only like to chime in to concord that this must be the definitive reference for lupus patients. Wallace explains the auto-immune response in understandable terms, and discusses how each physical system is involved in lupus, making this an attainable & indispensable guide specially for the newly diagnosed or those wanting a deeper understanding of this disease. ...more than

Dec 22, 2012 Mary rated it liked it

This book is really geared towards medical people. I regularly read this type of information considering there isn't much out there for lay people when information technology comes to Lupus. There is a lot of data that was as well in the previous edition. This book is really geared towards medical people. I regularly read this blazon of information because there isn't much out there for lay people when information technology comes to Lupus. There is a lot of information that was besides in the previous edition. ...more

Very informative and thorough guide of a very complicated disease. In some places it is seems very medical-jargon-y, but is very helpful overall. It gave me an first-class overview, helped me review the areas I currently have issues with and immune me to prepare questions for my doc team.

May 03, 2014 Reading Wolf rated it it was amazing

Recommends it for: Lupus patients, family unit of anyone with Lupus, and general practitioners.

This is my go to guide for any questions I have nigh my illness. I notice it to be an invaluable resources.

This is a tough read. The first 9 capacity are very technical and full of medical jargon. Once yous get past that it starts to become a little easier to understand.
There is a ton of data in this book. At times I felt a bit overwhelmed and had to stride back from it. If you or someone you know has Lupus and accept little to no knowledge of it and y'all want to go that information quickly, this is the book for you.

Nov 12, 2017 Lea rated it it was amazing

Informative and at present I can use it every bit a reference guide in the hereafter

Well, I now come across where the Dr. Business firm joke of "Information technology's non Lupus" comes from – whatever part of the man body tin exist affected by Lupus - from the top of the head (alopecia) to the tip of the toes (Raynaud'due south phenomenon) and every unmarried part in between. Wallace carefully makes his mode through the human body and lays out in clear language and piece of cake to understand diagrams and charts just how each part of the body tin can be afflicted.

And this disease affects women at a much higher percentage than men, and so Wallace,

Well, I now meet where the Dr. House joke of "It's not Lupus" comes from – whatsoever part of the human being body can be affected by Lupus - from the top of the head (alopecia) to the tip of the toes (Raynaud's phenomenon) and every single part in between. Wallace carefully makes his mode through the human being trunk and lays out in clear language and easy to sympathise diagrams and charts but how each part of the body can be affected.

And this disease affects women at a much college percent than men, so Wallace, bless him, spends a clamper of time assuring Lupus patients they aren't crazy or imagining symptoms, fifty-fifty though, sadly, medical "professionals" are statistically likely to dismiss a woman with Lupus equally just exaggerating or imagining her symptoms and pain and quickly misdiagnose her with something small, so fight for your patient rights, ask questions, ask for assist, and wait for existent support networks.

Easily accessible for the lay person with no medical background to read and digest. A well done introduction to the disease, laying out all parts of it in a calm and reassuring fashion, addressing both physical and mental issues this disease brings with it, and, well-nigh importantly, letting people who have just gotten this diagnosis know that information technology is OK to rant and rave and be angry and that y'all shouldn't blame yourself. Every bit logical as that sounds, sometimes it's what nosotros actually demand to hear from someone else.

...more

Very helpful for family and patients. It doesn't accost the deepest mechanics of the illness in technical terms, the author prefers to establish a narrative that is easy to follow and that is packed with resourceful information that every lupus patient should take. It includes a discussion of the treatments, the medications and other considerations. It can exist read by chapters, according to the firsthand needs of the reader. I really like it, the doctor shares years of experience with hundreds o Very helpful for family unit and patients. It doesn't address the deepest mechanics of the disease in technical terms, the author prefers to establish a narrative that is easy to follow and that is packed with resourceful data that every lupus patient should have. Information technology includes a discussion of the treatments, the medications and other considerations. Information technology can be read past capacity, according to the immediate needs of the reader. I really similar it, the doctor shares years of experience with hundreds of patients, that gives immense value to the book. ...more than

Dec 26, 2012 Debi Achey rated it really liked information technology

adept information but very technical even for a nurse. Was looking more than for coping strategies, more than technical read on lupus pathophysiology. Adept reference book to keep on your shelf to review during disease exacerbation.

While I wouldn't requite lupus whatever stars, this is a pretty helpful book if you need to know almost it. While I wouldn't give lupus any stars, this is a pretty helpful book if you need to know about it. ...more

May 15, 2017 Deana rated information technology actually liked it

Very informative, sometimes the medical terminology is a scrap hard to understand, but still very helpful and readable for all.

May 21, 2019 JoanieF. rated information technology really liked it

This will be a book I refer back to when I'chiliad facing new symptoms, flares, or the what-at present aspect of this rotten affliction.

Could exist helpful from an overall medical perspective, but not peculiarly helpful for "patients and their families." I did not discover it helpful in guiding at all. Information technology spouted many statistics, protocols, theories, and overall medical ideologies, only very few things that would exist important to the patient. Good affair I didn't have a problem with all the medical jargon...but I honestly don't retrieve nigh people would go far through this book 🙄 and in one case they did, what would they have gained? I made it Could be helpful from an overall medical perspective, merely not particularly helpful for "patients and their families." I did not detect it helpful in guiding at all. It spouted many statistics, protocols, theories, and overall medical ideologies, merely very few things that would be important to the patient. Good thing I didn't have a problem with all the medical jargon...but I honestly don't think almost people would make information technology through this volume 🙄 and once they did, what would they accept gained? I made it through and feel like I learned nothing more than what quick Google searching has revealed. ...more

November xv, 2019 Briana rated it it was amazing

I've been wanting to learn more in depth about lupus due to the possibility of me having it and this book was helpful to me ( I take MCTD and we're not certain which autoimmune diseases yet but this is suspected). It explains a lot and does take a few tips that are helpful. Definitely recommend if you are suspected of lupus or have information technology.

Very thorough. Written in laymen's terms merely with in-depth explanations to requite the reader a more than comprehensive knowledge of the disease without getting too bogged downward with technical terms. Information technology nonetheless satisfied my need to gobble up any and all medical info I can find, so the technical terms that were in that location past necessity didn't bother me. Very thorough. Written in laymen'south terms just with in-depth explanations to give the reader a more comprehensive knowledge of the disease without getting also bogged down with technical terms. Information technology still satisfied my demand to gobble upwards any and all medical info I can detect, so the technical terms that were there by necessity didn't bother me. ...more

A very helpful volume. Read in 2014. Referred to often.

Feels a little outdated in its presentation, despite beingness a 2008 edition. Learned some new lupus and autoimmune disorder details, as well as undifferentiated connective tissue disease (UCTD). Understand differences between lupus and fibromyalgia more clearly now.

Mar 27, 2012 Kaira rated it really liked it

I didn't read this for fun, simply because I was diagnosed with crossover lupus scleroderma and raynaud'due south miracle. It gave me lots of info that I didn't even go from my doc and gave me lots to ask him and gave me new knowledge nigh what is incorrect with me. I didn't read this for fun, but because I was diagnosed with crossover lupus scleroderma and raynaud's phenomenon. Information technology gave me lots of info that I didn't fifty-fifty get from my dr. and gave me lots to ask him and gave me new knowledge most what is wrong with me. ...more

Jan 23, 2014 Mariel rated it liked information technology

Read this book for work -- seeking resources & literature for patients and their families. Although information technology is however very medical/technical, this can serve every bit a corking reference book particularly when needing general data most labs, medications, and lupus symptoms.

A good volume -- lots info but a niggling dry out.

Past far i of the all-time Lupus Books I have read. Dr. Daniel Wallace is similar the God of Lupus!

This volume was a helpful read when I was get-go diagnosed, and a great reference for me if I ever have a question most blood-work.

Jul 23, 2013 Jan rated it actually liked it

Helpful. I read it to understand more near autoimmune diseases as at that place is overlap between the many diagnoses.

Daniel Jeffrey Wallace is an American rheumatologist, clinical professor, author, and fellow. Wallace has published 400 peer reviewed publications, 8 textbooks, and 25 book chapters on topics such as lupus, Sjögren syndrome, osteoarthritis, and fibromyalgia. He has the largest cohort of lupus patients in the United States (2000).

A full professor of medicine (Cedars-Sinai Medical Center, David Geff

Daniel Jeffrey Wallace is an American rheumatologist, clinical professor, author, and fellow. Wallace has published 400 peer reviewed publications, 8 textbooks, and 25 book chapters on topics such as lupus, Sjögren syndrome, osteoarthritis, and fibromyalgia. He has the largest cohort of lupus patients in the United States (2000).

A total professor of medicine (Cedars-Sinai Medical Center, David Geffen School of Medicine at UCLA), he is associate director of the Rheumatology Fellowship Programme at Cedars-Sinai. His seminal contributions to inquiry include being an author of the commencement paper to demonstrate vitamin D dysfunction and the importance of interleukin 6 in lupus, conducting the showtime big studies of apheresis in rheumatoid arthritis and lupus, and insights into the mechanisms of action of antimalarials.

Wallace's research accomplishments besides include conducting many clinical rheumatic affliction trials, examining the part of microvascular angina and accelerated atherogenesis in lupus, and work on anti-telomere antibodies which have garnered him 5 papers in The New England Journal of Medicine. Wallace's monograph, The Lupus Book, has sold over 100,000 copies since 1995.

...more

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